Desafios e aprendizado de conviver com a fenda labial e fissura palatina

Abstract

To know how adolescents and young adults with cleft lip and Cleft palate (CLP) experienced this condition in childhood and adolescence. Method: qualitative, exploratory and descriptive study, 11 participants were residents on the western border. Data were collected from September to October 2016, through audio recorded semi- structured interviews and then subjected to content analysis in the thematic mode. Results: Three categories emerged: The discovery of FLP birth reporting the lack of diagnosis of FLP during pregnancy. The prejudice related to poor training, which presents this prejudice in the lives of these young people. The information and referral to the FLP treatment shows the lack of information from the professionals relating to routing and treatment.Information and referral to the FLP treatment center indicates that professionals still lack information for routing and treatment.Final Thoughts: the FLP cause serious impact on the lives of children, adolescents and youth, early detection and referral can help in addressing and correcting this condition, improving the quality of life.